Jack is on the CCHMC Blog!

Check out my first post on the Cincinnati Children’s Hospital Blog! It’s about Jack overcoming CDH and how we are becoming a “normal” family. Enjoy!

http://cincinnatichildrensblog.org/rare-and-complex-conditions/when-life-gave-us-lemons/#more

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Event Changes – Third Annual CDH Awareness Blood Drive

Many of you may be wondering why there hasn’t been any information circulating about the Third Annual CDH Awareness Blood Drive. After all, the Holy Trinity Festival is on August 1-3, 2014. Well, unfortunately Hoxworth Blood Centers has changed their criteria for blood drives scheduled on the weekends and the CDH Awareness Blood Drive no longer meets their criteria for units collected. I do want to add that though I am saddened with their decisions, I will continue to donate blood and encourage you all who are willing and capable to do the same. What this means, however is that Matt, Jack and I will be at the Holy Trinity Festival for pure recreation. We wouldn’t miss it and are looking forward to seeing your smiling faces there.

I apologize for the late notice, I was trying to negotiate with my donor coordinator to no avail. Team Jack will take a break this summer to regroup and find other ways to raise awareness for this deadly defect while helping to give back to our community in medical need.

I am thinking a re-do of sorts on Matt and Kaytee’s wedding. Complete with a reggae band and cook out… or another beer Olympics; all to raise money for the Cincinnati Children’s Hospital Medical Center.

Thoughts, Suggestions, Volunteers?

Another Successful Blood Drive

2013 Blood Drive_2013_8-3

Thank you to all of you who took a chance on the weather and came out to join us at the 2nd Annual CDH Awareness Blood Drive and Holy Trinity Festival. I am still amazed that it didn’t rain all day!

We ended up having about the same number of people registered as last year….but the deferrals. Sheesh. But it’s all in an effort to keep the donors healthy and help the recipients get healthy. So, without further ado, the results.

We collected a total of 17 units of blood. That is with 7 deferrals! Congratulations to all who came out to donate and encourage! 17 units of blood and blood products can save the lives of as many as 51 people (unless you are like Jack and used all that in one week). You all have given a priceless gift of life. Your donations can only come from you and can not be manufactured. Also, thank you to the Hoxworth team for coming out to collect or donations and entertaining us on the bus. This drive was #4 for me with Hoxworth and I have yet to find an unpleasant staff member.

And thank you for continuing to show your support at the Holy Trinity Festival. All that dry weather, good music and great friends made the draft beer taste even better (though I partook in bottles). And congratulations to Ben for his big festival winnings. Matt and I are still amazed. We both remember an entire childhood of Bars and Bells and as big as a $5 win.

Now to look forward to next year. I am working on my plan for advertising the 3rd Annual CDH Awareness Blood Drive complete with radio and community advertisement. If you have any suggestions on how to get this event out into the public eye, please share. My goal is to double the collection next year. Yes, a lofty goal; but you can reach it if it’s not there.

Team Jack sig

hoxworth_blood_center_logo

CDH Blood Drive – The Excitement Continues

I am so excited about the response that I have gotten for the CDH Awareness Hoxworth Blood Drive on August 3, 2013! We are approaching the same number of donors as last year which signed up prior to the event. And please remember that walk-up donations are equally as valuable.

Here is just a quick note regarding criteria that must be followed to donate. These are pretty simple:
-You must weigh at least 110 pounds and be at least 17 years old (Though I envy all of you that are less than 110 pounds…)*
-Be in general good healthy and feeling well (no fever, sore throat or flu-like symptoms).

For more information about eligibility or to find parental consent forms, please visit http://www.hoxworth.org/donate_blood/eligibility.html

And some recommendations to help with the donation process:
-Eat a good meal and drink plenty of non-caffeinated and non-alcoholic fluids.
-Remember that you may donate again in 56 days (8 weeks) for whole blood donations and 112 days (16 weeks) for double red donations and can schedule your next donation at any area location at https://donateblood.uc.edu/Donor/ or by calling Hoxworth scheduling at (513) 451-0910.

Thank you to all that have signed up so far. You are helping your community with a priceless gift.

Team Jack sig

*A couple exceptions:
-There are different height and weight guidelines if donating double reds. These guidelines can also be found on the website listed above.
-There is a form that can be filled out by the parent or guardian of a 16-year-old that would like to donate blood.

2nd Annual CDH Awareness Blood Drive

hoxworth_blood_center_logoHoly Trinity and Team Jack are teaming up once again to host a blood drive to raise awareness for CDH. The drive will be held in a donor bus located in the parking lot of the Holy Trinity Church Holy Spirit Center parking lot beginning at noon on August 3, 2013. Appointments are taken every 15 minutes but walk-ins are also welcome. Double red cell donation is also an option. Please inform me if this is something you are interested in scheduling or want more information.

After your donation, stick around for some fun, music and corn-on-the-cob at the Holy Trinity Festival. All donors will receive a $4.00 credit towards kids games at the festival which officially starts at 5pm. Saturday’s band is The Remains with Final Order on Friday and Slow Burn Band on Sunday. Be sure to check them out.

If you aren’t the blood donation type or aren’t eligible, don’t worry. It’s not for everyone. But come on over and raise awareness with a good time.

The Quick and Dirty:

CDH Awareness Blood Drive                            Holy Trinity Festival
August 3, 2013                                                   August 2-4 2013
Prior to the Holy Trinity Festival                         2420 Drex Avenue
Holy Spirit Center parking lot                             Cincinnati, OH 45212
Noon- 6:00pm                                                    Friday 6pm – midnight with Final Order
To schedule an appointment:                            Saturday 5pm – midnight with The Remains
Kaytee at 513-607-4011 OR                             Sunday 3pm – 9pm with Slow Burn Band
roettgers.k@gmail.com

See you there!

A Great Day for a Walk

It’s been over a week and I have already lost one version of this post due to not saving…so I will try again and make sure this one is posted.

We were given a great day for a walk to benefit the Cincinnati Children’s Hospital Medical Center and all it’s patients and families. Team Jack met by the ‘T’ banner, coffee in hand. The weather was great considering there was rain in the forecast but not in the sky. With the temperature hovering a little over 60ºF, we bundled up, got our race bibs and t-shirts and starting on our walk.

It was very nice to be the normal family amongst a sea of people who were also pulling off the walking trail to administer medications, fill feeding pumps and reorganize piles of equipment under the stroller.

We only encountered one incident where we had to change Jack’s clothes due to a leaking mic-key button but used that chance to change his diaper and then we were on our way. We finished the walk way behind the pack and joined in on the line for pizza….of course until Matt mentioned chicken wings. Then on to Logo’s we went for some chicken wings, beer and commaraderie.

I definitely want to give a special Thank You!! to all who walked and/or made donations. Team Jack and all our donors were able to donate over $1750.00 to CDH research efforts at the Cincinnati Children’s Hospital Medical Center and the donations are still rolling in (the last donations will be accepted until October 31).