Event Changes – Third Annual CDH Awareness Blood Drive

Many of you may be wondering why there hasn’t been any information circulating about the Third Annual CDH Awareness Blood Drive. After all, the Holy Trinity Festival is on August 1-3, 2014. Well, unfortunately Hoxworth Blood Centers has changed their criteria for blood drives scheduled on the weekends and the CDH Awareness Blood Drive no longer meets their criteria for units collected. I do want to add that though I am saddened with their decisions, I will continue to donate blood and encourage you all who are willing and capable to do the same. What this means, however is that Matt, Jack and I will be at the Holy Trinity Festival for pure recreation. We wouldn’t miss it and are looking forward to seeing your smiling faces there.

I apologize for the late notice, I was trying to negotiate with my donor coordinator to no avail. Team Jack will take a break this summer to regroup and find other ways to raise awareness for this deadly defect while helping to give back to our community in medical need.

I am thinking a re-do of sorts on Matt and Kaytee’s wedding. Complete with a reggae band and cook out… or another beer Olympics; all to raise money for the Cincinnati Children’s Hospital Medical Center.

Thoughts, Suggestions, Volunteers?


A Great Day for a Walk

It’s been over a week and I have already lost one version of this post due to not saving…so I will try again and make sure this one is posted.

We were given a great day for a walk to benefit the Cincinnati Children’s Hospital Medical Center and all it’s patients and families. Team Jack met by the ‘T’ banner, coffee in hand. The weather was great considering there was rain in the forecast but not in the sky. With the temperature hovering a little over 60ºF, we bundled up, got our race bibs and t-shirts and starting on our walk.

It was very nice to be the normal family amongst a sea of people who were also pulling off the walking trail to administer medications, fill feeding pumps and reorganize piles of equipment under the stroller.

We only encountered one incident where we had to change Jack’s clothes due to a leaking mic-key button but used that chance to change his diaper and then we were on our way. We finished the walk way behind the pack and joined in on the line for pizza….of course until Matt mentioned chicken wings. Then on to Logo’s we went for some chicken wings, beer and commaraderie.

I definitely want to give a special Thank You!! to all who walked and/or made donations. Team Jack and all our donors were able to donate over $1750.00 to CDH research efforts at the Cincinnati Children’s Hospital Medical Center and the donations are still rolling in (the last donations will be accepted until October 31).


Cincinnati Walks for Kids-1 Week Left

Just a friendly reminder that there is only one week until the Cincinnati Walks for Kids at Coney Island. We hope you can join us to walk or show your support with a donation to CDH Research at Cincinnati Children’s Hospital Medical Center.


We look forward to seeing you on October 20, 2012 and thank all of you for your support!

Team Jack at Cincinnati Walks for Kids 2012

Come join Team Jack at the 2012 Cincinnati Walks for Kids on October 20. This 3-mile walk through Coney Island benefits the sick and injured children at Cincinnati Children’s Hospital Medical Center. The wheelchair, stroller and wagon friendly route is a great way to share stories and build camaraderie before it transitions to a children’s carnival, face painting, rides and lunch.

Team Jack is entered as a walking team and anyone and everyone is invited to join in the fun. We have designated our donations to go to the Congenital Diaphragmatic Hernia Research Team which consists of all key players who helped save Jack’s life; but you are also able to designate your donations to other groups and/or departments. A minimum of a $25 donation will award each walker a Cincinnati Walks for Kids t-shirt. Matt and I are also working on turquoise, tie dye ‘Team Jack’ t-shirts and Jack will be on the walk in his obnoxiously decorated stroller.


And if you do not want to walk on October 20, you are still welcome to make a donation and we will walk in your honor. Cash, checks and credit card donations are welcome and greatly appreciated.

28 Pints Richer

Saturday was our 1st Annual CDH Awareness Blood Drive hosted at the Holy Trinity Festival in Norwood, Ohio and what a day! I have to thank all of you who came out to support Jack and donate your blood for your community. Our goal was to replace the blood that Jack used during ECMO. He used approximately 25 pints of blood and we collected 28 pints! By my calculations (thanks iPhone calculator) we have potentially saved 84 lives.

There were a lot of first time donors that came out to support their community and a lot of return donors. I hope you all continue to donate regularly. Your contribution has to come from donors like you. For those of you who came out and were turned away for ineligibility, thank you for coming out and giving us your time. We really appreciated it and enjoyed your company. Thank you to Aunt Linda for holding Jack while I ate lunch!!

We were given a beautiful day to start and everything went smoothly after that. The bus was parked on the Montgomery Road entrance so we had great visibility. The first two donors came in at noon while I was getting Jack ready for the event so we missed them (sorry to miss you, Suzie but thank you). From that point on, there was always someone in the donor bus at all times. The Hoxworth staff was so fun and easy to work with and the donors were eager to give to the cause and hang out with Jack.

A special thanks to Elizabeth from Breath of Hope, INC for supplying the CDH Awareness bracelets, pamphlets, temporary tattoos and ribbon pins. The kids (adults) loved the tattoos and the by the end of the festival, there were plenty of CDH Awareness bracelets walking around.

Unfortunately, I was having so much fun during the drive that I started taking pictures late in the day. Next year, my goals are to collect 35 pints of blood and do a better job on documentation. Enjoy!

Why I donate Double Red Cells

This page is taken from http://www.hoxworth.org/donate_blood/donate_double_reds.html on Hoxworth’s website. Please visit their site if you have any questions about eligibility, safety and how your donation will be used.

Donate Double Reds


Chances are if you are thinking about donating blood, you already understand the importance of helping others in need. All blood donations are important, but a “two-unit red cell donation” is special. It saves you time because you can safely give twice as much in just one visit to Hoxworth. You may be eligible to donate a double red cells because your blood type might be in demand based on our community’s blood supply level.

What are the donor requirements to give a double red cell donation?


For donors giving two units of red blood cells in one donation event, the deferral period will be extended from 56 to 112 days between donations. Donor eligibility for double red cell collection will be determined differently and will vary by sex.

All donors are required to have at least a 40% hematocrit (HCT), which is the percentage of red blood cells in the total volume of whole blood (whole blood = red cells + plasma).


Is collecting two units of red blood cells from the same donation safe?

Donor and patient safety are our top priorities. Like whole blood, the process uses a sterile, single-use needle and tubing set. Also, the automated system is designed specifically to assure you do not give too much blood. While you are donating two units of red cells, the total volume of the donation is slightly less than that of a single whole blood donation because we are returning the remaining components (platelets and plasma) and saline back to you.


Will I feel the same as when I donate whole blood?

You may even feel better. First, we return all your plasma and platelets, plus 500 mL of saline. This way, you never lose the liquid portion of your blood, which is responsible for carrying the nutrients throughout your body. Second, this procedure uses a smaller needle than whole blood collection, so double red cell donation may be more comfortable for you.

Does this procedure take longer than giving whole blood?

Yes. The donation of two units of red cells by this method takes approximately 35 minutes. Your entire visit will most likely take slightly longer than 60 minutes.  Since two units are collected from you, you may serve twice as many patients with a single donation. With enough donors participating, the adequacy of the regional blood supply is significantly enhanced, which means fewer blood shortages. This may also fit into your schedule better, too. Because you are donating two units of red cells, you must wait 16 weeks, or 112 days, between donations. This is twice as long than a whole blood donation.


How does it work?

Blood is drawn from one arm and channeled through a sterile, single-use tubing kit to an automated machine. The automated system separates and collects the most needed components…in this case, two units of red blood cells…and then safely returns the remaining blood components back to you through the same arm.

Our 1st Annual CDH Awareness Blood Drive

The Cold-Hard Facts:
1. Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year)
2. The cause of CDH is not yet known.
3. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity – This inhibits lung growth
4. Roughly 50% of babies born with CDH do not survive
5. CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little
    research being done and virtually no media coverage
6. Jack received approximately 25 units of blood in his first 2 weeks of life to keep him
Did you know about CDH before it effected your child, your grandchild, your friend or your neighbor? Most people have not and that is why we are taking this opportunity to bring awareness to this often fatal birth defect. And what better way than to help others by collecting much needed blood donations to help people in need in our community.
Holy Trinity and Team Jack are teaming up to host a blood drive to raise awareness for CDH. The drive will be held in a donor bus located in the parking lot of the Holy Trinity Church beginning at noon on August 4, 2012. Appointments are taken every 15 minutes but walk-ins are also welcome. Double red cell donation is also an option. Please inform me if this is something you are interested in scheduling or want more information.
After your donation, stick around for some fun, music and corn-on-the-cob at the Holy Trinity Festival. All donors will receive a $2.00 credit towards kids games at the festival which officially starts at 5pm. Saturday’s band is 3Day Rule with Final order on Friday and Ooh LaLa on Sunday. Be sure to check them out.
If you aren’t the blood donation type or aren’t eligible, don’t worry. It’s not for everyone. But come on over and raise awareness with a good time.
The Quick and Dirty:
CDH Awareness Blood Drive                                Holy Trinity Festival
August 4, 2012                                                       August 3-5 2012
Prior to the Holy Trinity Festival                             2420 Drex Avenue
2420 Drex Avenue                                                 Cincinnati, OH 45212
Cincinnati, OH 45212                                             Friday 6pm – midnight with Final Order
Noon- 6:00pm                                                        Saturday 5pm – midnight with 3Day Rule
To schedule an appoitnment:                                Sunday 3pm – 9pm with Ooh LaLa
Kaytee at 513-607-4011 OR
See you there!