Jack is on the CCHMC Blog!

Check out my first post on the Cincinnati Children’s Hospital Blog! It’s about Jack overcoming CDH and how we are becoming a “normal” family. Enjoy!



March 31 is for CDH and Cincinnati Reds

Just a reminder that in addition to Opening Day, tomorrow it also CDH Awareness Day. So, when you are laying out your Reds gear for tomorrow, please throw in a little bit of turquoise for Jack and all the other CDH survivors and angels.CDH Awareness Ribbon

Another Successful Blood Drive

2013 Blood Drive_2013_8-3

Thank you to all of you who took a chance on the weather and came out to join us at the 2nd Annual CDH Awareness Blood Drive and Holy Trinity Festival. I am still amazed that it didn’t rain all day!

We ended up having about the same number of people registered as last year….but the deferrals. Sheesh. But it’s all in an effort to keep the donors healthy and help the recipients get healthy. So, without further ado, the results.

We collected a total of 17 units of blood. That is with 7 deferrals! Congratulations to all who came out to donate and encourage! 17 units of blood and blood products can save the lives of as many as 51 people (unless you are like Jack and used all that in one week). You all have given a priceless gift of life. Your donations can only come from you and can not be manufactured. Also, thank you to the Hoxworth team for coming out to collect or donations and entertaining us on the bus. This drive was #4 for me with Hoxworth and I have yet to find an unpleasant staff member.

And thank you for continuing to show your support at the Holy Trinity Festival. All that dry weather, good music and great friends made the draft beer taste even better (though I partook in bottles). And congratulations to Ben for his big festival winnings. Matt and I are still amazed. We both remember an entire childhood of Bars and Bells and as big as a $5 win.

Now to look forward to next year. I am working on my plan for advertising the 3rd Annual CDH Awareness Blood Drive complete with radio and community advertisement. If you have any suggestions on how to get this event out into the public eye, please share. My goal is to double the collection next year. Yes, a lofty goal; but you can reach it if it’s not there.

Team Jack sig


CDH Blood Drive – The Excitement Continues

I am so excited about the response that I have gotten for the CDH Awareness Hoxworth Blood Drive on August 3, 2013! We are approaching the same number of donors as last year which signed up prior to the event. And please remember that walk-up donations are equally as valuable.

Here is just a quick note regarding criteria that must be followed to donate. These are pretty simple:
-You must weigh at least 110 pounds and be at least 17 years old (Though I envy all of you that are less than 110 pounds…)*
-Be in general good healthy and feeling well (no fever, sore throat or flu-like symptoms).

For more information about eligibility or to find parental consent forms, please visit http://www.hoxworth.org/donate_blood/eligibility.html

And some recommendations to help with the donation process:
-Eat a good meal and drink plenty of non-caffeinated and non-alcoholic fluids.
-Remember that you may donate again in 56 days (8 weeks) for whole blood donations and 112 days (16 weeks) for double red donations and can schedule your next donation at any area location at https://donateblood.uc.edu/Donor/ or by calling Hoxworth scheduling at (513) 451-0910.

Thank you to all that have signed up so far. You are helping your community with a priceless gift.

Team Jack sig

*A couple exceptions:
-There are different height and weight guidelines if donating double reds. These guidelines can also be found on the website listed above.
-There is a form that can be filled out by the parent or guardian of a 16-year-old that would like to donate blood.

Blood Drive Incentives

hoxworth_blood_center_logoAre you eligible but just don’t have the time? The paperwork and donation usually only takes about 30 minutes. What a great way to start off the weekend?

Are you eligible but don’t have the motivation? In addition to the Oreos and apple juice after the donation, Hoxworth has added another incentive to donating blood and blood products. They have started the Premier Donor Club. For qualifying donations, you collect points which can be used to purchase gift cards to local vendors (ie; Gold Star Chili, LaRosa’s, Montgomery Inn, AMC Theaters, etc.). Each blood donation is worth a set amount of points. For example, one whole blood donation is 500 points. After my second donation, I will have 1000 points and can redeem them for a $10 gift card of my choice. Pretty cool, right? You can learn more and sign up for the Premier Donor Club at hoxworth.org/plus.

Not eligible or not interested in donating? Blood donation isn’t for everyone and that’s okay.

Team Jack sig

2nd Annual CDH Awareness Blood Drive

hoxworth_blood_center_logoHoly Trinity and Team Jack are teaming up once again to host a blood drive to raise awareness for CDH. The drive will be held in a donor bus located in the parking lot of the Holy Trinity Church Holy Spirit Center parking lot beginning at noon on August 3, 2013. Appointments are taken every 15 minutes but walk-ins are also welcome. Double red cell donation is also an option. Please inform me if this is something you are interested in scheduling or want more information.

After your donation, stick around for some fun, music and corn-on-the-cob at the Holy Trinity Festival. All donors will receive a $4.00 credit towards kids games at the festival which officially starts at 5pm. Saturday’s band is The Remains with Final Order on Friday and Slow Burn Band on Sunday. Be sure to check them out.

If you aren’t the blood donation type or aren’t eligible, don’t worry. It’s not for everyone. But come on over and raise awareness with a good time.

The Quick and Dirty:

CDH Awareness Blood Drive                            Holy Trinity Festival
August 3, 2013                                                   August 2-4 2013
Prior to the Holy Trinity Festival                         2420 Drex Avenue
Holy Spirit Center parking lot                             Cincinnati, OH 45212
Noon- 6:00pm                                                    Friday 6pm – midnight with Final Order
To schedule an appointment:                            Saturday 5pm – midnight with The Remains
Kaytee at 513-607-4011 OR                             Sunday 3pm – 9pm with Slow Burn Band

See you there!

A Great Site for New or Expecting CDH Parents

This is a great site that I found while tooling around on the inter-web. Check it out. It’s very intuitive. Being a person that likes to know all the details and possibilities, I wish I would have seen this after we found out about CDH.

A Paren’t Guide to Congenital Diphragmatic Hernia (CDH)